Genique's Recovery

In March 2016 our daughter, Genique, was diagnosed with a brain tumor growing from the optic nerve. It's called a Pilocytic Astrocytoma, but she calls it her "mushroom". On 31 Aug 2016, Dr Charlie Teo removed 85-90% of the tumour. Unfortunately Genique's vision was severely affected by the tumour. This blog is about her recovery and the challenges our family face daily. My Story / Video Story

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Sydney - First Day Home

Today we had some blood tests and a quick stop at endocrinologist for some education on the Diabetes Insipidus (DI).

Genique had yet another traumatic experience with needles.

Needle was inserted and then moved around inside her arm until a vein was found.

This was repeated tree times - OUCH!!!

I HATE it when they hurt my child. It makes me change into someone I don’t really like.

I'll ask only once not to hurt my child

Sweat instantly appeared on her forehead and at the top of her lip. I also broke out in sweat just by holding her arms and Sylvia held her on her lap whilst whispering calmly a few comforting words.

Nothing stopped her from screaming at the top of her lungs (I don’t blame her).

We arrived home at 1pm just to receive a call that we had to be back at 2pm as the blood results are ready.

She has more hormone deficiencies :(

Despite me being so angry, Genique calmed me down with her prayer.

Kind Regards,